54-Year-Old Woman Suffers From Rare Disease, Treatment Requires $1 Million A Year
Taking care of an ill family member is no easy feat and can be an extremely draining experience.
Besides that, friends and family also have to ensure that practical concerns, like finances, are in order to ensure the patient gets the appropriate medical care.
Back in 2018, Mdm Tang was diagnosed with Atypical Uraemic Syndrome, a rare disease that causes seizures and kidney failure.
When she relapsed in 2021, her doctor prescribed her Eculizumab, an expensive treatment that costs up to $1 million a year.
Mdm Tang’s daughter is now hoping to crowdfund her mother’s medical fees so she can continue receiving treatment.
First diagnosed with Atypical Uraemic Syndrome in 2018
On 13 Jan, Mdm Tang’s daughter, Wen Hui, started crowdfunding on Give.Asia to pay for her mother’s medical treatments.
Wen Hui shared that Mdm Tang was first diagnosed with Atypical Uraemic Syndrome, a rare autoimmune disorder that affects one’s kidney, in 2018.
Coming down with the life-threatening condition meant that she would often suffer from seizures, kidney failure, and haemolysis — a disintegration of red blood cells.
Life has been tough for the family since then. Mdm Tang apparently required weekly hospital visits and her treatment costs gradually increased.
At one point, her condition was so severe that she required dialysis with blood exchange. Following that, Mdm Tang’s condition seemingly improved.
Rare disease requires expensive treatment
However, in Jun 2021, she suffered a relapse. Things took a turn for the worse as Mdm Tang’s kidney function worsened and she was back to being dialysis-dependent.
Her doctor soon prescribed her Eculizumab. According to a letter by Singapore General Hospital (SGH), it is the only treatment available for her condition and is extremely expensive, costing about $1 million a year.
SGH kindly offered Mdm Tang a once-off limited fund of $500,000 but this will soon be used up by Feb 2022.
Given the rarity of the disease, there is currently no subsidy for the medication.
Without the medication, Mdm Tang will reportedly suffer life-threatening symptoms such as seizures and haemolysis.
Daughter hopes to crowdfund to pay medical bills
Mdm Tang’s daughter said that while Atypical Uraemic Syndrome is irreversible, her 54-year-old mother maintains a positive outlook on life.
As such, she hopes to crowdfund sufficient funds so her mother can carry on receiving treatment.
She continued that regardless of whether it is $1 or $10, any amount of money will go a long way to helping her mother.
To date, they have raised over $57,000 thanks to nearly 1,000 generous donors.
But there’s still a long way to go to reach their goal of $1 million.
Help contribute to Mdm Tang’s treatment
All funds raised will go directly to SGH for Mdm Tang’s treatment.
Hopefully, with the public’s help, the family will be able to crowdfund sufficient money for Mdm Tang’s treatment so she can focus on getting well.
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Featured image adapted from Give.Asia.